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MATIO Foundation was founded by two people of good will in Cracow.
Our Foundation?s initiator was Paweł Wójtowicz, whose child had died
from cystic fibrosis. He was the one to register the Foundation at the
end of 1996. The project came into being in March 1997. The full name
of our Foundation is as follows: Foundation for help Cystic Fibrosis
Sufferers and their Families MATIO (Polish Cystic Fibrosis Foundation
MATIO). Our legal status, goals and principles are enclosed in the Foundation?s Statute(in Polish).
MATIO Foundation is an independent organization which points towards
helping children and their families who are suffering from this
incurable sickness. The Foundation intends to cooperate with all
research and development centers in Poland and abroad which focus their
attention on cystic fibrosis issues.
Our main objectives are:
- educating the public, the sick and their families to increase awareness about mucoviscidosis,
- helping the sick with buying required medicine and rehabilitation equipment,
- organizing and financing home care trainings for sick children?s relatives,
- financing mucoviscidosis-related publications,
- advocating increased support for comprehensive scientific research and clinical trials
- taking care of the sick and their families
Apart from Paweł Wójtowicz, the foundation?s
initiators team consists of: Stanisław Sitko (Foundation?s Committee
chairman), Andrzej Pietrzak (Board?s vice-chairman), Barbara Zdebska
(Board?s vice-chairman), Wojciech Cichy (Foundation?s Committee
member), Bożena Woźniakiewicz (Foundation?s Committee member), Adam
Rakoczy (Foundation?s Committee member).
”We are hoping to fulfill all our objectives thanks
to our sponsors and all people of good will. Our foundation will join
forces to fight against cystic fibrosis.
We would like to offer everyone in need a glimmer of hope to show you
that this illness will not drastically change your future and will not
prevent you and your family from cherishing every moment of your lives.”
Stanisław Sitko
The idea of setting up a foundation came up in
1995, a year after death of my beloved son. What is more, our
foundation is named after our child: ?MATIO?. When suffering after this
loss I started to understand all sick children and their parents.
One of the main goals of our foundation was to create an independent
organization that would support all people tested by illness and would
unite all families that have to struggle with cystic fibrosis. Other
foundation?s important task was to educate the public about the
importance and scale of this phenomenon and to make people aware of the
fact that cystic fibrosis is not only a problem of the sick but also of
all healthy CF gene carriers, who are unaware of this fact and may get
to know about it in the most cruel and unpleasant way, when losing
their babies.
The first attempts to register our foundation were made in 1995 and the
project came into being in March 1997. You may ask us, what where we
doing before that? For over a year foundation?s members have been
trying to register this project and convince the authorities to support
our idea. The rest of the time was spent on reaching people who would
be as enthusiastic towards the foundation as we are. I am really glad
to say that we fulfilled all of our objectives. However, it was hard
sometimes. At the very beginning we had to learn how to organize our
own strategy of action, what should we do to find some sponsors.
Nevertheless, we firmly believe that there are many people of good will
among us, and thanks to our mutual determination we will be able to
acquire all means that will help us to fulfill sick children?s needs. I
wish this foundation would give you everything that my son did not have.
Paweł Wójtowicz
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